To read the full easy-read meeting notes click on the easy-read image
📅 Date: Wednesday 29th November 2023
📍 Held on: Zoom
The Norfolk Learning Disability Partnership Board (LDPB) met to talk about important topics for people with learning disabilities in Norfolk. Here’s a simple summary of what happened.
What We Talked About
1️⃣ The New Easy Read Learning Disability Plan
📢 Amanda Johnson explained how the new Learning Disability Plan was created:
- Over 7 months, more than 361 people shared their ideas.
- A draft version was shared at Locality Group meetings to check it made sense.
- The final Easy Read Plan was approved by the board.
- A detailed version will also be available on the Norfolk LD Partnership website.
📌 Action: The new Learning Disability Plan (2023–2028) is now complete and ready to be used.
2️⃣ Locality Groups Update
🗣 Lucy Adcock gave an update on the Locality Groups that took place between October and November 2023.
- Amanda Johnson presented the Learning Disability Plan at these meetings.
- A new section was added called “What is happening in your locality?”, where people could share news and events.
👥 Attendance Breakdown:
- Norwich – 6 self-advocates, 4 professionals, 5 parent/carers.
- North – 5 self-advocates, 6 professionals, no parent/carers.
- West – 14 self-advocates, 5 professionals, 2 parent/carers.
- South – 1 self-advocate, 2 professionals, 5 parent/carers.
- East – 6 self-advocates, 2 professionals, no parent/carers.
💡 Ideas to improve attendance:
- Advertise Locality Groups in newsletters and on the radio.
- Change meeting times to suit more people.
📌 Action: More ways to promote Locality Groups will be explored.
3️⃣ Learning from Deaths Report (LeDeR Annual Report)
🩺 Andy O’Connell shared findings from the LeDeR report, which looks at why people with learning disabilities and autism die younger.
🔎 Key findings:
- 72 reviews were completed in Norfolk & Waveney.
- People with learning disabilities often do not receive good healthcare.
- Most common causes of death:
- Pneumonia (lung infection)
- Cancer (breast, bowel, lung cancer)
- Nearly half of all deaths could have been prevented.
🏥 What needs to improve?
- More people need a pneumonia vaccine.
- Hospitals must use the Mental Capacity Act correctly.
- More support is needed for cancer screening.
- Care staff need better training to spot when people are unwell.
📌 Action: The LeDeR report will continue to help improve health services for people with learning disabilities.
4️⃣ Social Care Online Accounts
💻 Rachel Hyde-Smith talked about the new Social Care Online Accounts from Norfolk County Council.
- These accounts help people see documents and fill out forms online.
- You can choose if you want an account or not.
- To set up an account, you need an email and phone number.
❓ Questions asked:
- Can I update my own information? → No, a social worker must do this.
- Can I set up my own account? → Yes!
📌 Action: If you want to help test the online account system, email: rachel.hyde-smith@norfolk.gov.uk.
5️⃣ Other Updates
📊 Survey Results: Partnership Board meetings will stay online.
📅 Easy Read Training in Norwich (2024 dates):
- 7th March
- 13th May
- 20th August
- 15th November
📢 Upcoming Health Events:
- Breast Cancer Awareness – 24th October 2023
- Cervical Cancer Awareness – 30th January 2024
- Bowel Cancer Awareness – 4th April 2024
- Testicular Cancer Awareness – 30th April 2024
📌 Action: If you want more details, email contact@norfolkldpartnership.org.uk.
Next Meeting
📍 Held on Zoom – Want to join? Email contact@norfolkldpartnership.org.uk.
📢 Let’s keep working together to make Norfolk better for everyone! 😊
